Surveillance Information for State, Tribal, Local, and Territorial Public Health Professionals

A state-based telephone system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. Data are collected monthly in all 50 states, DC, Puerto Rico, the U.S. Virgin Islands, and Guam.

WONDER online databases utilize a rich ad-hoc query system for the analysis of public health data. Reports and other query systems are also available. Databases include AIDS public use data, births, cancer statistics, mortality, and population.

Data for selected nationally notifiable diseases reported by the 50 states, New York City, the District of Columbia, and the U.S. territories are collated and published weekly in the Morbidity and Mortality Weekly Report (MMWR).

Includes state and national asthma data on prevalence, days of restricted activity, days of work/school lost, physician visits, emergency department, medication use, and hospitalizations due to asthma and collection of in-depth state and local asthma data through the BRFSS Asthma Call-back Survey.

ABCs is an active, population- and laboratory-based surveillance system conducted in 10 Emerging Infections Program sites (EIPs). ABCs data are used to determine the incidence and epidemiologic characteristics of invasive disease due to the pathogens under surveillance.

The ADDM Network is a group of programs funded by CDC to determine the number of people with autism spectrum disorders (ASDs) in the US. The ADDM sites all collect data using the same surveillance methods modeled after CDC’s Metropolitan Atlanta Developmental Disabilities Surveillance Program.

An interactive web-based tool that provides state level BRFSS data analyzed so users can compare people with disabilities to those without for approximately 80 health indicators. DHDS was created using end-user groups preferences for design features and functions for website and data displays.

A standardized, multiple-source surveillance methodology was developed and implemented by 3 funded states (AZ, CO, NY). The programs use the standardized, multiple source methodology to determine the prevalence of FAS in a geographically defined area.

MADDSP is an ongoing system for monitoring the occurrence of selected developmental disabilities. Currently, MADDSP monitors intellectual disability, cerebral palsy, hearing loss, vision impairment and autism spectrum disorders.

The UDC project was designed to monitor two major complications of bleeding disorders (Thalassemia, Thrombosis, and Hemophilia): joint disease and blood-borne viruses. Patient health information and blood specimens for serologic testing were collected by staff at 135 hemophilia treatment centers.

CDC Childhood Lead Poisoning Prevention Branch was created to develop programs and policies to prevent childhood lead poisoning, educate the public and healthcare providers about childhood lead poisoning and provide funding to state and local HDs to determine the extent of childhood lead poisoning.

The purpose of the GSHS is to provide data on health behaviors and protective factors among students (aged 13-17 years) to help countries develop priorities, establish programs, and advocate for resources for school health and youth health programs and policies.

GYTS is a national representative school based survey of students 13-15 years of age, using a consistent and standard protocol across countries. It is intended to generate comparable data within and across countries.

The NYTS was designed to provide national data on long-term, intermediate, and short-term indicators key to the design, implementation, and evaluation of comprehensive tobacco prevention and control programs as it pertains to youth. The NYTS datasets are available for public use.

PedNSS is a program-based surveillance system that monitors the nutritional status of low-income children who attend federally-funded maternal and child health programs, mainly the WIC Program and the Early and Periodic Screening, Diagnosis and Treatment Program.

The SHPPS is a national survey periodically conducted to assess school health policies and practices at the state, district, school, and classroom levels. SHPPS assesses the characteristics of eight components of school health at the elementary, middle, and high school levels.

School Health Profiles is a system of surveys assessing school health policies and programs in states, urban school districts, and territories. Profiles surveys are conducted biennially by education and health agencies among middle and high school principals and lead health education teachers.

The Youth Risk Behavior Surveillance System (YRBSS) monitors priority health-risk behaviors and the prevalence of obesity and asthma among youth and young adults.

The Chronic Kidney Disease (CKD) Initiative is designed to provide comprehensive public health strategies for promoting kidney health which: seek to prevent and control risk factors for CKD, raise awareness, promote early diagnosis, and improve outcomes and quality of life for those living with CKD.

The National Diabetes Surveillance System is a state data application with county estimates of diabetes, physical inactivity, and obesity (using InstantAtlases). NDSS provides resources documenting the public health burden of diabetes and its complications in the US.

SEARCH goals are 1) uniform classification of types of childhood diabetes 2) estimate the number of new and existing childhood diabetes cases 3) describe the clinical characteristics of different types of diabetes 4) describe the complications of diabetes and 5) describe the quality of life.

NBP currently measures more than 450 environmental chemicals and nutritional indicators in people and are shared for other laboratories to use. NBP also shares its methods with many state public health laboratories, and the program trains these laboratories in the use of these methods.

Environmental public health tracking is the ongoing collection, integration, analysis, and interpretation of data about environmental hazards, exposure to environmental hazards, and health effects potentially related to exposure to environmental hazards.

NEARS is a surveillance system to capture data from environmental assessments of foodborne illness outbreaks.

Database of reported human illnesses caused by Vibrio. It identifies health risks of seafood and helps determine host, food, and environmental risk factors. Clinical data, information on underlying illness, history of seafood consumption, and exposure to seawater are collected 7 days before illness.

The system provides all State, tribal, territorial and some local HDs a platform to enter data about foodborne outbreaks from 1998-2008. The new system will integrate EFORS, EHEC and Salmonella surveillance systems into one system as well as add in school lunch program surveillance.

The principal foodborne disease component of CDC’s EIP. It is a collaborative project of the CDC, 10 EIP sites, USDA, and FDA; active surveillance for foodborne diseases and related epidemiologic studies to help public health officials understand the epidemiology of foodborne diseases in the US.

An effort to aid in investigations of future Listeria outbreaks and clusters. Participating states conduct prompt interviews of patients using the Listeria Case Report form and input into a central database.

PulseNet consists of a national network of public health laboratories that perform DNA fingerprinting on food-borne bacteria. The network permits rapid comparisons of these fingerprint patterns through an electronic database at the CDC.

CDC/CSTE maintain a National Botulism Surveillance System for domestic cases. All data regarding antitoxin releases and laboratory confirmation of cases are recorded annually and published by CDC.

The National Outbreak Reporting System (NORS) is a web-based platform designed to support reporting of waterborne and enteric foodborne, person-to-person, environmental and animal contact-associated disease outbreaks to CDC by state and territorial public health agencies.

NEARS is a surveillance system to capture data from environmental assessments of foodborne illness outbreaks.

The purpose of the system is to determine the incidence of trichinellosis, to maintain awareness of the disease, to monitor epidemiologic changes, to identify outbreaks, to guide prevention efforts, and to measure the effectiveness of those efforts.

WBDOSS is a national surveillance system that provides complete and accurate data for waterborne disease and outbreaks. WBDOSS captures outbreaks associated with recreational water, drinking water and non-recreational water that is not intended for drinking or where the intended use is unknown.

GDDOC is an epidemic intelligence unit for early detection of international events. It assimilates data from official sources and analyzes and provides data to CDC SMEs and programs for potential response. The GDDOC provides funds to support international outbreak responses by CDC programs.

The purpose of the GSHS is to provide data on health behaviors and protective factors among students (aged 13-17 years) to help countries develop priorities, establish programs, and advocate for resources for school health and youth health programs and policies.

GTSSData houses and displays data from four tobacco-related surveys conducted around the world.

GYTS is a national representative school based survey of students 13-15 years of age, using a consistent and standard protocol across countries. It is intended to generate comparable data within and across countries.

The NHSN is a web-based surveillance system used to gather and report data on healthcare-associated adverse events, associated risk and preventive factors, and antimicrobial use and resistance.

Integrates multiple indicators from sources to show the burden of CVDs and related risk factors in the US. It has an interactive Data Trends & Maps Web site to display data. Data are organized by location and indicator and include CVDs, risk factors, and biomarkers.

The CDC perinatal HIV surveillance system monitors and collects information about the pregnancy and birth of a child to a mother with HIV. Reporting on HIV-positive cases of children from HIV-positive mothers is conducted, removed of identifiers, and sent to CDC via a Secure Data Network.

GISP was established in 1986 to collect antimicrobial susceptibilities of gonorrhea from 27 STD clinics and 5 regional labs monthly.

Obtaining accurate estimates of HIV prevalence in TB patients is important as it guides the clinical management of HIV infection among patients with TB. In addition, this information tracks trends and serves to guide national policy for appropriate resource allocation to TB and HIV programs.

MMP is a national population-based surveillance project that collects information on clinical outcomes and behaviors of HIV-infected persons. Collection of data from interviews with HIV-infected patients provides information on the current levels of behaviors that may facilitate HIV transmission.

The National HIV Surveillance System maintains information on persons diagnosed with HIV infection and reported to the CDC by local and state HIV surveillance programs using the enhanced HIV/AIDS Reporting System (eHARS), a browser-based data collection and management tool.

Population-based surveys are nationally-representative household surveys that provide data for monitoring and impact evaluation indicators in the areas of population health including HIV, STIs, and nutrition. These surveys are typically conducted every 3-5 years to monitor trends in HIV/AIDS indicators.

The number of cases and disease incidence rates are reported by year, type of STD, and area of report and are further aggregated by gender or gender, age group, and race/ethnicity.

The Viral Hepatitis Surveillance Program compiles clinical, serologic, and epidemiologic data on cases of hepatitis A, B, and C. The system monitors the effectiveness of prevention and control programs for these diseases.

A web-based influenza surveillance system that collects reports of influenza-related hospitalizations and deaths. Pneumonia and influenza cases are tracked using data from the 122 Cities MRS, the Influenza-associated Pediatric Surveillance System and the Emerging Infections Program.

The system aggregates information from existing hospital ED syndromic surveillance systems operated by state and local health departments. The users engage in harmonizing ILI criteria, foster use of ED-Syndromic Surveillance for ILI monitoring, share and offer expertise.

The FluSurv-NET conducts surveillance for population-based, lab-confirmed influenza related hospitalizations in children (< 18 years) and adults. It covers over 80 counties in the 10 Emerging Infections Program (EIP) states and additional Influenza Hospitalization Surveillance Project (IHSP) states.

CDC Childhood Lead Poisoning Prevention Branch was created to develop programs and policies to prevent childhood lead poisoning, educate the public and healthcare providers about childhood lead poisoning and provide funding to state and local HDs to determine the extent of childhood lead poisoning.

Injury hospitalization and emergency department cases are identified from state-based HDD and ED data using the principal diagnosis (or first-listed ICD-9-CM diagnosis code) with other selective factors.

Interactive database system that provides customized reports of injury-related data.

Mental illness is an important public health problem in itself—about 25% of U.S. adults have a mental illness—but also because it is associated with chronic medical diseases such as cardiovascular disease, diabetes, and obesity. Mental illness surveillance by organizations such as CDC is a critically important part of disease prevention and control.

The GSPS was a 12-month (December 2010 to December 2011) telephone survey of adult residents in 25 Gulf coastal counties/parishes of Florida, Alabama, Mississippi and Louisiana.

PedNSS is a program-based surveillance system that monitors the nutritional status of low-income children who attend federally-funded maternal and child health programs, mainly the WIC Program and the Early and Periodic Screening, Diagnosis and Treatment Program.

The biennial survey assesses infant feeding policies/practices at all hospitals and birth centers in the US and Territories with maternity care. The survey is sent to all U.S. hospitals and birth centers with registered maternity beds to the person identified as most knowledgeable.

The program tries to reduce the rate of adults (16+) with blood lead levels 10 mcg/dL or more. It builds state capacity to initiate/improve adult blood lead surveillance programs to measure trends in adult blood lead levels and intervenes to prevent lead over-exposures.

NIOSH has designed/implemented a comprehensive surveillance system for fatal traumatic occupational injuries. AOISS compiles risk factor information and permits quantitative epidemiologic analyses used for public health and prevention planning.

NIOSH studies the causes and consequences of coal-related respiratory disease and carries out a program for early detection/prevention of coal workers’ pneumoconiosis. (Coal Workers’ X-ray Surveillance Program, National Coal Workers’ Autopsy Program, and NIOSH B Reader Certification Program)

Collects data on deaths in the US commercial fishing industry and identifies high-risk fisheries. Data is from sources in each state, including reports from the U.S. Coast Guard, local law enforcement, and local media; death certificates; and state-based occupational fatality surveillance programs.

The FACE program concentrates on investigations of fatal occupational injuries. The primary intent of this program is to provide interested users with access to the full text of hundreds of fatality investigation reports.

The data is provided by the Mine Safety and Health Administration (MSHA) who collects data files on mine location, employment, coal production, etc. Raw data files are released to the public on the MSHA web site. NIOSH converted MSHA data from 1983-2009 to SPSS and dBase IV file formats.

OMSHR converted MSHA data from 1983-2008 to SPSS and dBase IV file formats. Several recoded and computed variables were added to the information. The 2006 data, fatalities determined to be chargeable after the MSHA data files were closed out are added to the data files maintained by OMSHR.

NAWS is an employment-based survey of the demographic, employment, and health characteristics of the US hired crop labor force. It’s performed under contract to the DoL and its information is made available to the public through research reports and a public use data set.

Patient information is collected from each NEISS-Work hospital for every emergency visit with an injury or illness associated with work for pay or other compensation, agricultural production, and volunteer work for an organized group.

NOMSS output will result in the production/dissemination of sector-based mortality trend data specific for industry and occupation. Data will inform the 8 NORA sectors and researchers of high disease mortality, high risk occupations, and information gaps to set priorities.

SENSOR builds and maintains occupational illness and injury surveillance capacity within state health departments. NIOSH provides cooperative agreement funding and technical support to states to conduct surveillance on one or more occupational illnesses or injuries.

eWoRLD collects occupationally-related respiratory disease data on the pneumoconioses, occupational asthma, and other respiratory conditions from various national and state-based data sources. Selected data on related exposures are also presented.

NOHSS monitors the burden of oral disease, use of oral health care delivery system, and status of community water fluoridation on both a national and state level. It is designed to track oral health surveillance indicators based on data sources and surveillance capacity available to most states.

WFRS information is the basis for national reports that describe the percentage of the US population on public water systems receiving optimally fluoridated drinking water. Developed by CDC and the Association of State and Territorial Dental Directors.

CDC conducts abortion surveillance to document the number and characteristics of women obtaining legal induced abortions in the US. Each year, CDC requests abortion data from the central health agencies of 52 reporting areas (the 50 states, DC, and NYC). Information is provided to CDC voluntarily.

CDC collects information on ART cycles from US fertility clinics, and publishes an annual report. Data include patient profile, reasons for ART treatment, type of ART procedure, treatment outcomes, and clinic contact information.

HDs in the 50 states, DC, and NYC provide CDC with copies of death certificates and available linked outcome records of all deaths occurring during/within 1 year of pregnancy. These are reviewed by CDC to determine the cause of death and outcome of the pregnancy, associated medical conditions.

The PNSS was a program-based surveillance system that monitors the nutritional status of low-income pregnant and postpartum women in federally funded maternal health programs, specifically the Special Supplemental Nutrition Program for Women, Infants, and Children (WIC Program).

PRAMS is a CDC and state health department project that collects state-specific, population-based data on maternal attitudes/experiences before, during, and after pregnancy. The goal of PRAMS is to improve the health of mothers and infants by reducing adverse outcomes.

GTSSData houses and displays data from four tobacco-related surveys conducted around the world.

GYTS is a national representative school based survey of students 13-15 years of age, using a consistent and standard protocol across countries. It is intended to generate comparable data within and across countries.

The NYTS was designed to provide national data on long-term, intermediate, and short-term indicators key to the design, implementation, and evaluation of comprehensive tobacco prevention and control programs as it pertains to youth. The NYTS datasets are available for public use.

A sentinel network of travel and tropical medicine providers that use the data to provide surveillance of mobile populations. Through an international network of health clinics, GeoSentinel tracks the geographic and temporal trends in infectious diseases among international travelers, immigrants, and refugees.

The application provides a common set of data collection tools, reporting and messaging to help track and control TB related cases. It provides a mechanism for the HDs to track, store, and confirm TB cases and report de-identified information to the CDC via PHINMS.

Obtaining accurate estimates of HIV prevalence in TB patients is important as it guides the clinical management of HIV infection among patients with TB. In addition, this information tracks trends and serves to guide national policy for appropriate resource allocation to TB and HIV programs.

The NEDSS Base System (NBS), TB PAM started December 19, 2008. Data from the NBS TB PAM is now being transferred to CDC using HL7 messaging, version 2.5. The NBS TB PAM will include the revised RVCT with features for validating surveillance data, basic reports, and electronic lab reporting.

In 2004, CDC initiated the NTGS to provide genotyping for all culture-positive tuberculosis (TB) cases in the United States. NTGS provides a mechanism to identify TB transmission events, and improve public health’s ability to identify and respond to TB outbreaks.

TB-GIMS stores and manage genotyping data; tracks Mycobacterium tuberculosis isolates; relays immediate notification of genotyping results; links isolate results with patient-level data from NTS system; queries and exports data; and generates reports and distribution maps on genotype clusters.

TIMS helps health departments and other facilities manage TB patients, conduct TB surveillance activities, and manage TB programs overall. TIMS has replaced former DTBE software (SURVS-TB and TBDS) and provides for electronic transmission of TB surveillance data and program management reports.

A list-assisted random-digit-dialing phone survey with a mail survey to children’s immunization providers to monitor vaccination coverage at national/state/local areas for kids 19-35 months. It also collects influenza vaccination coverage estimates based on parental report for kids up to 17 yrs.

NVSN evaluates the impact of new vaccines and vaccine policies through active sentinel surveillance at 2 US medical centers, now 7 centers. The 7-site surveillance system is the NVSN-Extended System (NVSN-ES).

VAERS is a national vaccine safety surveillance program co-sponsored by the CDC and FDA. VAERS is a post-marketing safety surveillance program, collecting information about adverse events (possible side effects) that occur after the administration of vaccines licensed for use in the United States.

A cooperative agreement funded by CDC and implemented by HDs in Philadelphia and Los Angeles County. Its purpose is to obtain population-based incidence rates for varicella and herpes zoster disease and to evaluate the impact of current and future varicella vaccination practices and policies.

The National Malaria Surveillance System collects epidemiological and clinical information on malaria cases diagnosed in the United States. Malaria cases are reported by state health departments, laboratories, and health care providers.

The survey is an ongoing, national random digit dial phone survey that collects information on experiences of intimate partner violence, sexual violence and stalking among non-institutionalized English and Spanish-speaking women and men 18+ years in the US.

NVDRS combines data from police reports, death certificates, coroners’ reports, medical examiners’ offices, and medical providers into a cohesive database allowing a variety of public health professionals and decision-makers to analyze and understand the nature/trends of violence in the US.

The RSN provides a central repository for rabies data in the US by state and local health department and federal personnel engaged in rabies prevention and control at CDC and USDA/Wildlife Services.